Genetic Aortic Disorders Association Canada
|Record #: MHL0108||Last Modified: 26 Apr 2018||Last Full Update: 26 Apr 2018|
|Social Media|| Facebook: www.facebook.com/GeneticAorticDisordersAssociationCanada/
|Description & Services|
|Alternate Name||GADA Canada|
|Description||GADA Canada is dedicated to saving lives and enabling a healthier future for individuals living with Marfan syndrome and other genetic aortic disorders through education, awareness, support and research.
To succeed in these endeavours GADA is focusing on:
* Promoting the creation of multidisciplinary aortic (MDA) clinics, centres of excellence for the treatment of all genetic aortic disorders across Canada.
* Expediting the development of improved diagnostic criteria and treatment protocols for every genetic aortic disorder based on the international patient-registry research program of the Montalcino Aortic Consortium (MAC). MAC is comprised of researchers and physicians who are specialists in genetic aortic disorders.
Volunteer opportunities are available.
|Hours||National Office, Mon-Fri 8:30am-4pm|
|Application||To become a member, please make a donation at http://www.gadacanada.ca/donate-now/.
To volunteer, please contact the National Office. Volunteers are asked to fill out an application, and go through a screening process to determine the best fit for them within the organization.
|Fees||Membership - $25/individual; $35/family; $100/corp/500 lifetime ; Donation - Individual and Corporate ; Membership - all donors become members of the Association for one year; any donation amount entitles you to a membership|
|Languages||English ; French|
|Meetings||Biennial GADA conference for patients and physicians, held across Canada: diagnosis, treatment, and management of genetic aortic disorders.|
|Mailing Address||c/o Genetic Aortic Disorders Association Canada
128 Queen St S
Mississauga, ON L5M 4Z0
|Toll Free Phone||1-866-722-1722|
|Primary Contact||Chrisanne Campos, Executive Director; Email: firstname.lastname@example.org|
|Primary Executive||Chrisanne Campos, Executive Director|
|Print Material||Information booklets; videos for youth and medical professionals; booklets for children; pamphlets.|
|Elections||Annual General Meeting: usually at the conference (held in different locations across Canada to allow members across Canada to attend)|
|Funding||Grants ; Fundraising ; Donations ; Membership fees|
|Service Level||(50) Non Profit ; (51) Registered Charity|
|Subjects||Advocacy ; Health education ; Information and referral ; Medical research ; Musculoskeletal diseases ; Volunteer opportunities|