Genetic Aortic Disorders Association Canada
|Record #: MHL0108||Last Modified: 29 Mar 2017||Last Full Update: 29 Mar 2017|
|Social Media|| Facebook: www.facebook.com/GeneticAorticDisordersAssociationCanada/
|Description & Services|
|Alternate Name||GADA Canada|
|Description||GADA Canada is dedicated to saving lives and enabling a healthier future for individuals living with Marfan syndrome and other genetic aortic disorders through education, awareness, support and research.
To succeed in these endeavours GADA is focusing on:
1. Promoting the creation of multidisciplinary aortic (MDA) clinics, centres of excellence for the treatment of all genetic aortic disorders across Canada.
2. Expediting the development of improved diagnostic criteria and treatment protocols for every genetic aortic disorder based on the international patient-registry research program of the Montalcino Aortic Consortium (MAC). MAC is comprised of researchers and physicians who are specialists in genetic aortic disorders.
Volunteer opportunities are available.
|Hours||National Office, Mon-Fri 8:30am-4pm|
|Application||To become a member, please make a donation at http://www.gadacanada.ca/donate-now/.
To volunteer, please contact the National Office. Volunteers are asked to fill out an application, and go through a screening process to determine the best fit for them within the organization.
|Fees||Membership - $25/individual; $35/family; $100/corp/500 lifetime ; Donation - Individual and Corporate ; Membership - all donors become members of the Association for one year; any donation amount entitles you to a membership|
|Languages||English ; French|
|Meetings||Biennial GADA conference for patients and physicians, held across Canada: diagnosis, treatment, and management of genetic aortic disorders.|
|Mailing Address||c/o Genetic Aortic Disorders Association Canada
128 Queen St S
Mississauga, ON L5M 4Z0
|Toll Free Phone||1-866-722-1722|
|Primary Contact||Chrisanne Campos, Executive Director; Phone: (Business) 905-826-3223; Email: firstname.lastname@example.org|
|Primary Executive||Chrisanne Campos, Executive Director, Genetic Aortic Disorders Association Canada|
|Print Material||Information booklets; videos for youth and medical professionals; booklets for children; pamphlets.|
|Elections||Annual General Meeting: usually at the conference (held in different locations across Canada to allow members across Canada to attend)|
|Funding||Grants ; Fundraising ; Donations ; Membership fees|
|Service Level||(50) Non Profit ; (51) Registered Charity|
|Subjects||Advocacy ; Health education ; Information and referral ; Medical research ; Musculoskeletal diseases ; Volunteer opportunities|