Canadian Marfan Association

[  Suggest an Update |  Volunteer Opportunities |  Print Version (New Window) ]
Record #: MHL0108 Last Modified: 02 May 2014 Last Full Update: 02 May 2014
Record Details
Social MediaFacebook Facebook: www.facebook.com/CanadianMarfanAssociation
Twitter Twitter: twitter.com/CanadianMarfan
Website Website: www.marfan.ca
SOCIAL_MEDIA_ICONFacebook Twitter Website
Description & Services
Alternate NameCMA
DescriptionAssists patients and their families with genetic aortic disorders including Marfan Syndrome and related disorders through national programs of education, support, and research. Member of the Thoracic Aortic Disease Coalition, International Federation of Marfan Syndrome Organizations, and Canadian Organization for Rare Disorders. Marfan syndrome is a genetic disorder of the connective tissue that can affect the skeletal system, eyes, lungs, blood vessels and heart.  
 
1 in 3000 Canadians are affected by Marfan syndrome and even more by genetic aortic disorders. Early recognition of the condition and early diagnosis is essential in order to prevent early death from aortic aneurysm and subsequently dissection allowing individuals to take preventative health care measures.  
 
Volunteer opportunities are available.
HoursNational Office Mon-Fri 8:30 am-4:00 pm
Areas ServedCanada
ApplicationTo become a member, please make a donation in any amount at www.marfan.ca/donation.  
To volunteer, please contact the National Office. Volunteers are asked to fill out an application, and go through a screening process to determine the best fit for them within the organization.
FeesMembership - $25/individual; $35/family; $100/corp/500 lifetime ; Donation - Individual and Corporate ; Membership - all donors become members of the Association for one year; any donation amount entitles you to a membership
LanguagesEnglish ; French
MeetingsBiennial CMA conference held across Canada: Diagnosis, treatment, and Management of Marfan syndrome and Genetic Aortic Disorders. Next meeting: Summer 2015, Ottawa
Contact Information
IntersectionKitimat and Argentia Rd
AccessibilityFully Accessible
Mailing Addressc/o Canadian Marfan Association 
Box 42257 
Centre Post 
128 Queen St S 
Mississauga, ON L5M 4Z0
Office Phone905-826-3223
Toll Free Phone1-866-722-1722
E-Mailinfo@marfan.ca
Websitewww.marfan.ca
Primary ContactSharmin Gandhi, Executive Director; Email: sharmin@marfan.ca
Primary ExecutiveSharmin Gandhi, Executive Director, Canadian Marfan Association
Other Details
Print MaterialInformation booklets; videos for youth and medical professionals; booklets for children; pamphlets.
Established1986
ElectionsAnnual General Meeting: usually at the conference (held in different locations across Canada to allow members across Canada to attend)
FundingGrants ; Fundraising ; Donations ; Membership fees
Service Level(50) Non Profit ; (51) Registered Charity
Subjects
SubjectsAdvocacy ; Health education ; Information and referral ; Medical research ; Musculoskeletal diseases ; Volunteer opportunities